Monday, November 30, 2009

Having RA is such a downer

We are coming up to the Christmas season and already negative thoughts come creeping up in my mind.

This past weekend was busy. My second daughter had a cheersport competition. While it was wonderful to watch her, it was not comfortable seating arrangements. I was in stadium seating (you know, hard benches, no backs, no feet room). I sat there for over an hour saving seats for other family members and waiting for it to start. Her team was one of the first teams to do their routine, but we needed to stay for the whole thing and for the award ceremony (she won sixth).
My son is in indoor soccer and he absolutely loves it. I love watching him, but again it is stadium type seating, sitting on cold metal benches in a cold dome.
Other traditional things that we do each year is watching the santa claus parade, watching outdoor nativity plays, singing carols to neighbours at my parents, go sledding on Christmas day. I hate the fact that fear and doubt come creeping up in my mind. I worry about the pain. I worry about the cold (I live in Canada). I hate the fact that RA can be such a downer and at thirty-five years of age I worry about these things. I want to do these activities with my kids, BUT then I don't want to because of the pain. I am singing in my church's Christmas Cantata but I worry that my feet will be on fire for the hour long program. At least this year the music is to be memorized so my wrists get a break from holding the book.I hope I can continue these activities with my children. We love Christmas and all our traditions. I don't want RA to take something else from me.

Tuesday, November 24, 2009

Sleep

When I was a kid, I never wanted to go to bed. I would sneak flashlights in my room and read into the night. I would sneak out and watch tv. I would fight sleep until I couldn't no more. I now have a daughter just like this!! She thinks she's tricking me.... (but that's another post!)

As I got older my views changed about sleep. I no longer fought sleep so much, but I was still a night owl. I rarely went to bed before midnight. I rarely took naps (with maybe the exception of Sunday afternoons). Since my diagnoisis of RA, sleep has been my friend. However, this month I have noticed a big change in my need for sleep.

Lately, I've had a hard time waking up. Somedays, it's close to noon before I snap out of it. Unfortunately with homeschooling my son, there are mornings where I have to put a movie on for him and I flake out on my lazyboy. I have felt incredible bad for him on those days. I have felt guilty. He doesn't mind. He is not that behind in his school work. But I still feel guilty.

I just finished reading RAGuy's post about sleep. I think it so amazing how other people with RA can really help each other out. I feel bit better now after reading his post that I just need sleep sometimes, and I shouldn't feel bad about it. There are days when I am still learning to be kind to myself!

It's hard to believe that November is almost finished. I have never been a fan of November. I do miss the sun, but I shouldn't complain too much because we have been having unseasonable high temperatures this month. Kinda makes up for the cold October we had. Winter is my least favourite time of the year, because I generally feel worse during this time. Oh well, one day at a time, right?!

Monday, November 09, 2009

I was in a slump....

I was in a slump. I had a particular rough weekend of the "poor me's". Once in awhile I get these feelings and sometimes it's hard to pull out of them. The kids were away this weekend and I had absolutely no plans. I was tired and hurting, and ended up holing up in my house. I didn't even want to leave to go to church on Sunday. I had no calls. I was basically feeling sorry for myself.

Thanks for the well wishes on my last post. I was surprised to find that RAGuy posted on his blog my fifth anniversary post (I didn't even turn on my computer this weekend). Sara commented on RAGuy's post that she thought that celebrating my RA was INSANE and that RA basically ruined her life.

I can understand Sara's feelings. There are days when I feel the same way. There are days like this past weekend when I feel sorry for myself and the why me's come creeping up in my mind. It would be nice to not have pain on a regular basis. It would be nice to not have these nodules on my hands. It would be nice to not have to take medicine every day. I'm not always happy how my life has turned out. I DID NOT HAVE A CHOICE IN HAVING RA!

I DO have a choice in how I will respond to it. I want to have a positive attitude. I want to celebrate the little things in my life. There has been lots of not-so-great things that has happened because of RA, but there has been some positive ones too. I need to remember these things because it helps me crawl out of the slumps like the one I was in this weekend. I need to have HOPE.

Wednesday, October 28, 2009

Happy Fifth Anniversary RA

Well it's been officially five years since I've been diagnosed with rheumatoid arthritis. Happy anniversary!! I think... Who would I be without RA? Well, most likely I would be working full time, hardly ever seeing my children. I certainly wouldn't have been able to continue homeschooling the children after my husband left. I probably wouldn't be living here either. Wow. It's hard to think where I would be right now if there wasn't RA.

Do I wish that I was healthy and normal? Well, yeah!!! Some days having RA is a royal pain in the butt. I don't like feeling tired a lot of the time, having extremely sore joints, sore feet, achy, fuzzy brained (or meth brained as I sometimes call it). However, there are some things I can be thankful for. I am thankful that I can be home with my kids. I am thankful for the semi-assessable townhouse unit I live in. I am thankful that my drugs are covered with my provincial disability plan. I am thankful that I am doing as well as I am after five years.

I saw my rheumatologist today and wished him happy anniversary. He chuckled. I am going for a MRI soon on my hands/wrists to check for erosions. If I'm doing pretty much the same, we will stay with the drugs I'm on. If I am getting worse, he wants to try some different drugs. I really do like my rheumatologist. He listens to me and is also kind and patient with me. So, anyway, all in all, it was a good visit.

Here's to another good five years, RA!!

Friday, October 23, 2009

Friday Fragments

So what is up the Grey's anatomy?? Did Katherine Hiegl leave the show? Who are these new people? Why isn't Meredith in the latest show (well except at the end)? I don't get it. Not sure it's my favorite show.


I also enjoy watching House, The Biggest Loser (though I haven't picked a favorite yet), Bones, Brothers & Sisters.


Why is it that I am attracted to this man and his character on House? I mean, really. He is not that nice. Actually, he is down right grouchy. Yet, so attractive in a weird way. Anyone else feel the same way?


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I love fall. I love the beautiful leaves falling gently down and the crackly sound it makes when you walk through them. I love apples, apple cider, pumpkin pie and turkey dinners.


Something else happens in the fall..




A friend introduced me to Pumpkin Spice Lattes. I do LOVE them. However, I must confess.... I am a Starbucks virgin. I get to the counter and I start stuttering because I don't know what to order (other than pumpkin spice lattes during the fall). It's like a foreign language that I've never heard of before. I generally go to Tim Hortons for a large black coffee. I don't know what foam, dashes of this or that, no fat latte, whatever means!! So please, help me!! What is YOUR favorite drink at Starbucks??

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I'm loving Karate for Christ. I've earned five stripes so far on my white belt. It fun being with other adults (love you kids, but mommy needs some adult time!!). Last night we learned how to get out of a choke hold, elbow to the gut, hammer fist to the eh special place, and a kick in the knee. Lovely.

Tuesday, October 20, 2009

I won a bloggy award!!

Lana at Living It, Loving It gave me this award!! I am supposed to now tell you 10 things about me you may not know. I think I have made a list a while ago, but maybe some of you newer visiters might not have seen it.

1. I really hate using public bathrooms. I would rather turn yellow and wait until I get home before using public bathrooms.

2. I have three nephews and a niece. My one nephew calls me "Dee dee".

3. I love to sing and am in the choir at my church. I sing alto.

4. I love music and love to dance but I am usually too shy to do so in public.

5. I teach grade 5/6 sunday school at my church now for six years. I love teaching!!!

6. Aragant people annoy me.

7. Bad drivers annoy me and I "yell" at the stupid drivers in my car.

8. I am Canadian, but I really don't like winter much. It is pretty and I like it for Christmas, but after that I wish it would go away.

9. I love playing cribbage and other card games. My dad taught me how to play cribbage when I was about 10. We recently had a game together (which hadn't happened in a long time) and it was a nail-bitter. He beat me but only by a few points!! :)

10. I love horseback riding, but haven't done it in many years. I used to take lessons as a teen.

I now award Elinor at Welcome to Barton Cottage and Heather at Especially Heather.

Monday, October 19, 2009

Jesus Messiah

http://www.youtube.com/watch?v=K_B4VCwhb8Y

This link goes to a youtube video of three siblings singing this beautiful song. At first I wanted to hear it because it was sung by two sisters and a brother just a little older than my three kiddos, but the words and music just brought tears to my eyes. Please click on the link to hear them, but I posted the song sung by Chris Tomlin and the lyrics. (please someone tell me how to post videos!!!)

Jesus Messiah

He became sin Who knew no sin
That we might become His Righteousness
He humbled himself and carried the cross
Love so amazing Love so amazing

Chorus: Jesus Messiah Name above all names
Blessed Redeemer Emmanuel
The rescue for sinners The ransom from Heaven
Jesus Messiah Lord of all

His body the bread His blood the wine
Broken and poured out all for love
The whole earth trembled
And the veil was torn
Love so amazing Love so amazing

Chorus: Jesus Messiah Name above all names
Blessed Redeemer Emmanuel
The rescue for sinners The ransom from Heaven
Jesus Messiah Lord of all

All our hope is in You
All our hope is in You
All the glory to You, God
The light of the world

Chorus: Jesus Messiah Name above all names
Blessed Redeemer Emmanuel
The rescue for sinners The ransom from Heaven
Jesus Messiah Lord of all